Walking a Fine Line as a Squeaky Wheel: Communicating With Doctors

https://raredisease.net/living/communicating-with-doctors

In a nutshell, I walk the line by knowing what my tolerance level is, choosing my battles, and using diplomatic, intentional communication.

Asking a direct question with respect took all the guesswork out of everything for me, and I feel much more secure in our patient-provider relationship.

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