NCRI collects information on the diagnosis and primary treatment of the patient’s cancer. Data is collected on primary treatments that take place within approximately 12 months of diagnosis.
Between 85% and 90% of all new tumour registrations are registered electronically from pathology reports shortly after the patient’s diagnosis. Other electronic data sources such as HIPE(collects demographic, clinical and administrative data on discharges from, and deaths in, acute public hospitals nationally), radiotherapy and death certificates may also create a small number of new tumour registrations.
One of the primary ways to share NCRI data is through reports and publications. These reports compile the latest statistics and analyses, and highlight many topics including:
- emerging cancer trends
- the effectiveness of prevention and treatment initiatives
- cancer disparities
- areas where prevention efforts are needed
These reports provide stakeholders with the necessary insights to guide decision-making.
https://www.ncri.ie/en/data-collection/the-data-journey/the-patient
Lynch Syndrome Ireland 