Just because people see me out in public, they shouldn’t assume that I’m back to normal or ‘feeling great.
She sure doesn’t look sick. She’s a complainer. She’s STILL off work?!
“Some clinicians express frustration with patients who have invisible illnesses – blaming them, resenting symptoms without the privilege of certain expression, accusing them of exaggerating or being ‘difficult’, pathologising them as malingering or psychosomatic, or labeling them in ways that are dismissive of their deep knowledge and understanding of their own bodies and lived experiences.”
It’s not only spoken words that can make us feel judged. In a study published in the Journal of General Internal Medicine, for example, Dr. Leonor Fernández – an assistant professor of medicine at Harvard – reported that one in 10 patients she studied “felt judged and/or offended” by comments written about them in their patient portal chart notes2 – especially among patients reporting poor health, unemployment or inability to work.
Lynch Syndrome Ireland 