Pilot registry in St. James’s Hospital for patients with a cancer-predisposing genetic alteration called the CAmPaiGn Study and are delighted to be actively recruiting patients.
While this is an important first step, we do not believe it is enough. We are strongly advocating for a national registry, as we feel this is both deserved and urgently needed.
If you have one of these alterations, please complete our PPI survey: https://surveymonkey.com/r/PKMSGD3
Every response will help strengthen the argument that a national registry is needed, wanted, and justified .
Lynch Syndrome Ireland 