LYNKED IN is a free annual, one-day educational conference for individuals with Lynch syndrome, their families, and caregivers, hosted by the Lynch Syndrome Center within the Division of Cancer Genetics and Prevention at Dana-Farber Cancer Institute.
This conference provides attendees with updates on guidelines for screening and prevention, strategies for communicating with your family, and advances in the treatment of Lynch syndrome. The goal is to connect and empower Lynch syndrome families.
This programme is part of the Irish Cancer Society’s Women’s Health Initiative (WHI), the aim of which is to improve health and wellbeing for women impacted by cancer who are dealing with the side effects and consequences of treatment.
Phases of thisisGO
Phase 1 was launched on September 20th 2021. It is a personalised online resource for women impacted by cervical cancer. If you have a partner in your life, this platform can also support them. If you are a health care provider working in the area this can also support you and your practice.
If you are newly diagnosed, receiving treatment, in surveillance or living well with and beyond cancer thisisGO.ie has information that is tailored to meet your needs.
Phase 2 covered ovarian cancer and was launched on the 4th of February 2022
Next Phase due shortly will cover Genetic Cancers including BRCA and Lynch Syndrome
It is hoped that the remaining three gynaecological cancer and GO cancer genetics will be complete before the end of 2022.
Dr Doireann O’Leary (@WorldOvarianCancerDay @RTEToday) talks about the importance of being symptom aware and shares the meaning of BEAT.
She also talks about the importance of ‘the big T’, ie getting Treatment early. If someone has these symptoms it likely is something less serious than Ovarian Cancer but the most important thing is not to brush it off, do go to your GP and get checked and try to get in to the habit of doing that. Building this habit greatly increases the chances of early diagnosis.
“This is the first time that HE4 has ever been evaluated in a primary care setting, so it will be exciting to see larger-scale studies implemented to further assess its effectiveness as a diagnostic aid. Earlier diagnosis will have important implications for women’s treatment, care and ultimately, survival.”
If you have been diagnosed with Lynch syndrome, you have may questions about your medical care. This page from the USA has information on cancer risk, screening, prevention and treatment for people with an inherited mutation in a Lynch syndrome gene.