“Patients cannot exist in a policy vacuum, continuity, foresight, and accountability are essential components of public trust in healthcare systems.
National strategies shape not only clinical pathways, but also questions of equity, trust, access, accountability, and the lived experience of illness.
When there is no ownership, no timeline, and no transparent process for renewal, uncertainty is transferred onto patients and families already carrying immense emotional and structural burdens.” Pamela Deasy(Patient Advocate)
Lynch Syndrome Ireland 