The law on organ donation in Ireland has changed. If you’re aged 18 or over, you’ll be considered a potential organ donor, unless you opt out or are part of an excluded group.
— HSE Ireland (@HSELive) June 17, 2025
If you do not wish to become a donor, you can choose to opt out by adding your name to the opt-out… pic.twitter.com/2HLGlOU5qn
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Don’t Miss Your Shot: A Letter to My Newly Diagnosed Self
Key Takeaways
- Lynch syndrome diagnosis necessitates proactive healthcare, including frequent screenings and prophylactic surgeries, to manage increased cancer risks.
- The emotional journey involves anger and empowerment, transforming adversity into advocacy and resilience.
- The narrative highlights the importance of seizing preventive opportunities and living intentionally, inspired by a loved one’s cancer battle.
- Strong familial bonds and nurturing relationships are central to the protagonist’s journey, emphasising the legacy of courage and determination.
But here’s the thing: your anger doesn’t paralise you—it empowers you.
Manual For Men booklet
This booklet looks at how your lifestyle affects your cancer risk and how to spot cancer early. It includes details on testicular and prostate cancer. It also gives you tips on how to make the best of a visit to your doctor.
https://www.cancer.ie/cancer-information-and-support/cancer-prevention/mens-health
UCAN Ireland
United Cancer Advocates Network is a network of advocates across the Island of Ireland.
They represent a broad range of cancers and locations.
Traditionally they have been advocating in their our own disease areas, now they come together to speak as one voice on key issues that impact the whole cancer community.
Their focus is on raising awareness and bringing solutions to resolve key systemic issues.
CanChoose
NCCP launches three HSE National Clinical Guidelines
The previous and current National Cancer Strategies recommend that the NCCP develop guidelines for cancer care to improve the quality of care delivered to patients.
To date, nine national clinical guidelines for cancer have been developed, with various updates throughout the years and further updates to continue.
National Clinical Guidelines play a pivotal role in shaping cancer care. They offer patient-centred, evidence-based recommendans that enhance the quality of care provided to patients. They also empower patients to actively participate in decisions relating to their care.
The NCCP recognises the importance of patient input and their role as key stakeholders in developing guidelines. Several patients were invited to contribute to the development of these guidelines which has helped to capture important quality of life issues and patient values.
The guidelines are intended for use by all healthcare professionals involved in multiple stages of the cancer pathway for the three most common cancers in Ireland. They will also be of interest to patients undergoing diagnosis, staging and treatment of these cancers, and their families and carers.
What is the Lynch syndrome registry? (UK)
Lynch syndrome can run in families. It increases your risk of being diagnosed with bowel cancer, as well as other cancers including endometrial (womb), ovarian, stomach, bladder, kidney, and skin cancers. This condition is diagnosed by having a genetic test.
The Lynch syndrome registry records and analyses important information about people with Lynch syndrome. This helps to understand how people with Lynch syndrome are looked after and cared for across England. All information is held on a secure and confidential computer database.
Why have a Lynch syndrome registry?
The focus of the Lynch syndrome registry is to address the differences in access, quality and timeliness of regular check-ups that people with Lynch syndrome in England currently experience.
The registry will collect information from people with Lynch syndrome and help us to better understand how these people are currently being monitored and managed.
Nouscom to Present Final Results from Successful Phase Ib/II Trial of NOUS-209 in People Living with Lynch Syndrome, Demonstrating Powerful Potential to Intercept Cancer in its Earliest Stages of Development
Lynch Syndrome (LS) is a common hereditary condition that significantly increases the risk of developing cancer, especially colorectal and endometrial cancers
NOUS-209 is an off-the-shelf immunotherapy designed to harness the power of the immune system to recognise and eliminate cancer before tumours develop.
Full safety and immunogenicity results from a Phase Ib/II study of NOUS-209 in LS to be presented in an oral presentation at AACR 2025
Following positive meetings with FDA, NOUS-209 clinical data support advancement to a potentially registration-enabling clinical study for cancer interception in LS
15 Years in Cancer Research: A Journey of Curiosity, Resilience and Collaboration
I have also learnt along the way that people have very different opinions about how to do research, what is important and not, and how you should spend your time at work and outside the working hours. My advice is to find your inner voice and stay faithful to your values and goals. Listen and learn by your colleagues, friends and family, but don’t let others decide what is right for you
Colon Cancer: Understanding Peripheral Neuropathy
If you’ve received chemotherapy as part of your colon cancer treatment, one of the side effects you may experience is numbness and tingling in you extremities, also known as peripheral neuropathy.
What Is Peripheral Neuropathy?
Numbness and tingling of your extremities (hands and feet) is called peripheral neuropathy. This condition is associated with several causes, including chemotherapy to cancer treatment, and involves damage to the nerves between the extremities and the central nervous system.
Recovery from peripheral neuropathy is usually slow, but steps can be taken to encourage regeneration of the damaged nerves. Some approaches include acupuncture, massage, physical therapy, and transcutaneous nerve stimulation.
https://news.cancerconnect.com/cervical-cancer/colon-cancer-understanding-peripheral-neuropathy
Lynch Syndrome Ireland 