GP’s and Early Detection of Cancer in Ireland

Your GP is usually the first stop if you notice something that could be cancer, and Ireland’s system works best when they can send you quickly for tests. That is where it often falls down.

GPs are the front door. Around 79% of people in Ireland saw a GP in 2024, averaging 4.4 visits each. Most cancers (about 85%) are found because someone has symptoms, not through screening. So a GP spotting the signs early, and acting on them, matters a great deal.

The wait after the GP visit is the problem. Once a GP suspects cancer, they refer you to a specialist clinic or for scans. Those services often miss their targets:

  • For urgent breast clinics, only about 7 in 10 women were seen within the 10-day target in early 2025. The goal was 95%.
  • More than 2,700 people waited longer than recommended for an urgent colonoscopy in just five months.
  • Where you live matters. At one Dublin hospital, only about 3 in 10 urgent breast patients were seen on time.

Vague symptoms are hard. Things like unexplained weight loss or tiredness don’t point to one type of cancer. Ireland has no national fast-track route for these cases. Northern Ireland has started trialling one.

Getting to a GP can be hard too. There are GP shortages in parts of the north-west, the Dublin commuter belt and some inner-city areas. Most adults without a medical card or GP visit card pay for visits, which can put people off going early. i

Screening is improving. Free bowel screening now covers ages 57–71, and it is due to be extended to ages 50–54. But fewer than half of eligible people take it up.

What’s next. The national cancer plan ends in 2026, and it met only three of its 24 targets. As of July 2026, no replacement had been announced, and a review was due first.

What this means for you: if you notice something unusual that doesn’t go away, get it checked early. If you’re told it’s nothing but it persists, it’s reasonable to go back and say so.

Does having Lynch Syndrome mean that I will definitely get cancer?

Financial toxicity of cancer remains

The Right to Be Forgotten legislation is progress, but its scope is specific: it relates to mortgage protection insurance for a principal private residence, subject to eligibility criteria, including five years in complete remission and a cover limit of €650,000, but it does not remove every financial barrier faced by people affected by cancer.

Financial toxicity is one of the lasting, often invisible consequences of a cancer diagnosis. It is the loss of income, the additional costs of travelling to appointments, parking, medication, nutritional supplements and ongoing care. It is the long term effects of treatment that can affect our ability to return to work, earn a living or plan for the future. It is the financial uncertainty that can follow us for years, even when we are fortunate enough to hear the words no evidence of disease.

https://lnkd.in/p/dEMQcnxs

If I am diagnosed with Lynch Syndrome, are my children and family at risk?

Some Peas & Q’s about Hereditary cancer

Full of information to help people better understand genetics and hereditary cancer.

if you want a copy now at www.genetionary.org

LYNCH SYNDROME IS MORE THAN A CANCER RISK. IT CAN AFFECT HOW WE LIVE EVERY SINGLE DAY

https://www.sciencedirect.com/science/article/pii/S1462388926002279

When people talk about Lynch syndrome, the conversation often focuses on genetic testing, cancer screenings, and prevention.

But what about the emotional and physical impact of living with an inherited cancer risk?

A new study explored something that deserves more attention: **quality of life among people with Lynch syndrome.**

Researchers examined 288 adults, including Lynch syndrome carriers, non-carrier relatives, and individuals with and without a history of cancer.

What they found is worth a closer look:

🔹 Lynch syndrome carriers reported lower quality of life and greater symptom burdens.

🔹 Fatigue, insomnia, and pain were among the symptoms reported.

🔹 Participants with a history of cancer experienced significantly poorer physical functioning.

🔹 The study also explored whether machine learning could help identify individuals who may need additional supportive care.

Sometimes, the most important expertise in the room is the person living in the body that’s been treated

If we value the patient voice in shaping the future of healthcare, why do we still struggle to hear it in the present?

Experts in our cancer, yet strangers in our own healthcare conversations.

As patient advocates, we are often called experts in our cancer areas, we contribute to research, challenge policy, sit at decision making tables and ask clinicians to listen to the patient voice. Yet, when we return to our own doctors, some of us find ourselves having to fight to be heard. Why?

https://lnkd.in/p/dHNdXT89

How to be a Good patient

Being a good patient means doing what you can in concert with the medical system to maximise your quantity and quality of life. Here’s a list of ways to do:

  1. Be on time for your appointments.
  2. Be nice to everyone you meet.
  3. Take your meds as directed.
  4. Follow all prep instructions.
  5. Get your tests done on time.
  6. Do your screenings as required.
  7. Be absolutely open and honest with your doctors.
  8. Help your doctors help you by having a list of questions in advance.
  9. Don’t be afraid to educate your doctors as needed.
  10. When you need help, ask for it. (It feels good to help someone, right. Why deny that feeling to anyone else?).
  11. If you’re not comfortable with something, say so.
  12. If there’s something you don’t understand, say so.
  13. Encourage your doctors to talk to each other.
  14. Eat right, stay hydrated, rest when you must, and exercise when you can.

THE ELEPHANT IN THE ROOM

Please know that it’s perfectly okay to talk about cancer around me…

And it’s also perfectly okay to say the word “cancer” around me.

The sound of… and topic of… “the c-word” causes me no distress at all… as I processed the emotional gut punch and harsh realities that come with an advanced cancer diagnosis a long time ago.

Please know that it’s okay for you to ask me: “Frank, I don’t want to invade your privacy or anything, but I heard through the grapevine that you have cancer. So, how are you doing, man?”

In fact, broaching the subject is more than okay; it’s quite welcome… for at least three huge reasons:

  1. Such an overture alleviates any worries I have about being a downer or burden on anyone.
  2. Your willingness to engage with such a heavy subject opens a door that allows me to be comfortable sharing what’s really going on with me.
  3. Most important, such reaching out is a powerful medicine for the utter isolation and loneliness of it all.

𝗔𝗜 𝘄𝗼𝗻’𝘁 𝗳𝗶𝘅 𝗵𝗲𝗮𝗹𝘁𝗵𝗰𝗮𝗿𝗲 𝗯𝘆 𝗶𝘁𝘀𝗲𝗹𝗳.

AI is another tool to use judicially. Not a replacement for the human connection and critical thinking.

Should Healthcare leaders should stop treating AI as a “plug-and-play” software purchase. AI is an operational transformation, not just a tool. We see too many systems try to “buy” their way out of clinical burnout without changing the underlying workflow.

https://lnkd.in/p/d2w7qswP