What stories and what science do we find and share online when we are striving to connect with other “patients” or “carers” like us?
In this podcast, Stefania takes the case of two family cancer syndromes (BRCA and Lynch) to explore the way social media can shape everyday coping with the diagnosis of a rare or little known health condition.
https://offtheshelf.org.uk/event/digital-media-use-for-health-and-illness-dr-stefania-vicari/
Lynch Syndrome Ireland 