Social media are not neutral: their governance and structure impact how and what content is shared on them.
Research has shown that a range of ‘platform mechanisms’ increasingly influences the way stories are told, information circulated and connections made online.
Yet, little is known about how platforms’ privacy settings and users’ awareness of them influence which personal narratives (e.g., harrowing, heartening) are more likely to be posted online in relation to genetic conditions.
https://sites.google.com/sheffield.ac.uk/previvorship/resources/social-media-platforms
Lynch Syndrome Ireland 