Disclosure of genetic information raises ethical issues, mainly concerning autonomy, confidentiality, duty of beneficence, moral responsibility, and feasibility. The rights and duties of patients, relatives, and healthcare professionals are intertwined.
We suggest that healthcare professionals experienced in genetic counselling can consider disclosing risk by direct letter to at-risk relatives while taking into account the benefits of a family-mediated first contact and that counselling must be easily accessed when relatives want to make contact.
Direct contact has to be implemented in a framework of ethical considerations and good practice and tailored for both the individual patient and relatives.
https://www.nature.com/articles/s41431-024-01551-9#Abs1
(note: small sample)
Lynch Syndrome Ireland 