“A patient can have the most thorough and accurate genetic testing available, but if that information is not integrated into their health care, that testing is meaningless. Or worse, if that testing is not interpreted correctly, it can be harmful”
Author: Lynch Syndrome Ireland
Should children be Tested for Hereditary Syndromes?
“It is generally not a good idea to genetically test minor children for hereditary cancer syndromes, such as Lynch syndrome or BRCA, unless their family medical history warrants it.”
How to live with Lynch Syndrome: There is Hope…
Citizens’ Jury on Access to Health Information
Familial Burden and Other Clinical Factors Associated With Various Types of Cancer in Individuals With Lynch Syndrome
Conclusions: Familial burden – in addition to age, sex, and specific LS gene – should be used to assess LS carriers’ risks of specific cancers and guide decision-making about organ-specific surveillance.
Conquering cancer by targeting its genetic abnormalities
“Some say, ‘Oh, I don’t want to know.’ And I think, well, you’re nuts because knowledge is power, and you can stay ahead of this,”
Ageing Previvors
A day in the Life of Bren….
Bren has Lynch Syndrome and is constantly trying to create awareness.
Before and after his scan…..
Colorectal Cancer Screening
Dr @AliceLeBonniec from @nuigalway and Dr Nick Clarke from @DCU are looking to recruit patient and public involvement contributors to help design two @IrishCancerSoc research studies to improve colorectal cancer screening uptake. More details above!
Finding out you have Lynch Syndrome…
IS NOT finding out you have Cancer.
Finding out you have Lynch Syndrome…
IS A WAY TO PREVENT CANCER.
