Category: Information

European Hereditary Tumour Group(EHTG)

EHTG has a track record of expanding guidelines and practises the concept of “dynamic guidelines”. This concept means that whenever evidence has been produced in the published literature that should lead to a change of previous guidelines and is relevant for the clinical management of a syndrome, EHTG will ask for a revision of the corresponding chapter. 

Welcome everybody interested to get actively involved and join them in these efforts to improving our knowledge in the field of hereditary predisposition to cancer and to implement this knowledge for improved clinical care. This effort embraces all clinical disciplines!

https://www.ehtg.org/guidelines.php

AliveAndKickn Podcast – Dr Jose Perea 

“I talk with Dr Jose Perea Garcia, Digestive Surgeon as well as cancer researcher in Madrid.  We talk about how surgery has evolved and management of the Lynch Syndrome patient compared to sporadic cases.  We compare some protocols and coverage in the US vs elsewhere such as Spain where there is government run.  Urban vs rural is an issue everywhere.  I convince Dr Garcia to offer me a ticket to an Atletico Madrid game if I get there, including if they play Real Madrid.” 

https://www.aliveandkickn.org/podcast-1/episode/26556485/aliveandkickn-podcast-dr-jose-perea-garcia

Physical Activity and Cancer

https://www.cancer.gov/about-cancer/causes-prevention/risk/obesity/physical-activity-fact-sheet#top

ON THIS PAGE

X or Exit

From Tweets to Threads: Exploring the Transforming Role of Social Media in the Lynch Syndrome Community.

https://www.curetoday.com/view/from-tweets-to-threads-exploring-the-transforming-role-of-social-media-in-the-lynch-syndrome-community?fbclid=IwAR3rPH9FrYXuN7QlNnoVZjLkMTEzVICTE9lR8IQZWeiXrnM_WEABZFJ6i0w

Beyond Cancer

This podcast series features cancer survivors sharing how they’ve navigated the physical side effects, emotional challenges, and different dynamics of life during and after cancer treatment.

https://www.dana-farber.org/health-library/articles/beyond-cancer/

When oncologists like me rain bad tidings on patients, they need one thing above all….

Anxiety is infectious. The conduct of a doctor can trigger a ripple of anxiety or inject a sense of order, even when the news is unpleasant. Bearing the scars of past illness, returning patients are especially not looking to be shielded from reality.

What they want is for someone to give bad news andremain steadfastly in their corner.

As is unfortunately the case for many, you can rain bad tidings on people but if you steer the conversation with calm, compassion and most of all, a sense of shared humanity, they will find their feet. This is the part that I have found surprising to predict and moving to absorb.

https://www.theguardian.com/commentisfree/2023/aug/16/when-oncologists-like-me-rain-bad-tidings-on-patients-calm-and-compassion-are-crucial

Introduction to Telemedicine and Digital Health-RCPI

Recently available from RCPI…https://courses.rcpi.ie/product?catalog=Introduction-to-Telemedicine-and-Digital-Health

This course is a standalone, asynchronous module which is open to all clinicians. This module will provide learners with foundational knowledge of Telemedicine and Digital Health. It is worth 5 ECTS and requires 125 hours of learning to gain the credits. 

The aim of this course is to enhance the outcomes of telemedical consultations for both patients and clinicians in Ireland. 

Learners will be covering introductory topics such as:

• Overview of telemedicine

• Overview of digital health

• Organisationl infrastructure 

• Patient perspective, accessibility, and digital literacy

• General Data Proctection Regulation (GDPR)

• Professionalism

• Communication

Navigating the Dual Nature of Social Media: A Patient Advocate’s Guide

The key to navigating the social media landscape successfully is knowing how to leverage the positives and stay vigilant about the negatives.

Online harassment, misinformation, and divisive behavior have become all too common. This harmful behavior can negatively impact both advocates and the causes we strive to support.

As advocates, we set the tone for the communities we work with. We can inspire and uplift others by cultivating an environment of respect, empathy, and support. Especially in a world that sometimes feels divided and polarized, cultivating kindness and understanding becomes even more important. Let’s work together to make the online world a better place, where compassion and understanding prevail, and where our collective efforts lead to meaningful change.

https://powerfulpatients.org/?p=54248#top