Author: Lynch Syndrome Ireland

Prospective Lynch Syndrome Database

Cancer risk and survival in path_MMR carriers by gene and gender up to 75 years of age: a report from

the Prospective Lynch Syndrome Database.

www.plsd.eu

Let’s Talk about Dying: Part 2

“You exist in a kind of limbo, trapped between your old life and an almost inevitable early death. There’s only one way out, the only question is when?”

https://bowelcancerman.wordpress.com/2020/10/19/lets-talk-about-dying-part-2/

Understanding and Attitudes toward Cancer Clinical Trials among Patients with a Cancer Diagnosis: National Study through Cancer Trials Ireland

“Recognising and addressing these concerns may reduce anxiety and improve willingness to participate in CCTs. Improvement in information delivery on CCT concepts is warranted and tailoring communication of CCT information would be beneficial, particularly for the groups highlighted in the study that had lower levels of understanding. Patients in the study indicated that having a patient navigator would be a useful aid and consideration of the use of trained facilitators to support communication of the importance of clinical research may be advantageous.”

https://www.mdpi.com/770772

Powerful Preventive Opportunity:

“Ireland’s small population offers an opportunity to identify all those with Lynch Syndrome (LS) in the country, which would represent a powerful preventive opportunity to meaningfully impact on the incidence of cancer in Ireland.”

Irish Cancer Society – Lynch Syndrome

//platform.twitter.com/widgets.js

AGA Guideline on the Diagnosis and Managment of Lynch Syndrome

AGA Guidelines: A helpful tool for your GI doctor

According to the American Gastroenterological Association (AGA), all colorectal cancer patients should undergo tumor testing to see if they carry Lynch syndrome, the most common inherited cause of colorectal cancer, according to a new AGA guideline. They have provided an excellent resource for GI doctors on how to go about testing individuals with colorectal cancer for Lynch syndrome, as well as how to manage their screening if they do have Lynch syndrome. If you have recently been diagnosed with colon cancer or have a diagnosis of Lynch syndrome please print this PDF and take it to your GI doctor or GI Oncologist to be sure you are getting the right testing and management for colon cancer associated with Lynch syndrome.

AGA Guideline on the Diagnosis and Managment of Lynch Syndrome

http://www.gastro.org/info_for_patients/2015/8/11/a-patient-guide-understanding-lynch-syndrome