Author: Lynch Syndrome Ireland

A Beginner’s Guide to Lynch Syndrome

https://www.mskcc.org/cancer-care/patient-education/managing-lynch-syndrome

Look Back & Track

The latest campaign from Andrex® and Bowel Cancer UK reveals 1 in 4 Brits (24%) won’t look at their poo, despite it being a natural and free health tracker. This partnership aims to change this, encouraging people to be less embarrassed, more in tune with their toilet habits and know what’s normal for them.  

The main symptoms to watch out for when tracking your poo are: bleeding from your bottom or blood in your poo, a change in your pooing habits (you might be going more or less often, or have diarrhoea or constipation that might come and go), losing weight but you’re not sure why or feeling very tired all the time but you’re not sure why, or a pain or lump in your tummy.

Having these symptoms doesn’t always mean you have bowel cancer, but it’s still important to find out what’s causing them. Even if you have just one of these, ask your GP for a simple test you can do at home. 

https://www.bowelcanceruk.org.uk/news-and-blogs/news/look-back-and-track/

“The changes in my body are welcome reminders that I am alive.”

Like so many others, I find it challenging to cope with change – and the fear and uncertainty it provokes……

https://open.substack.com/pub/bethlgainer/p/unsure-footing?utm_campaign=post&utm_medium=web

Bowel Cancer in Ireland: Event

PATIENTS, BOWELS, BASICS, AND BREAKTHROUGHS

SEPTEMBER 11TH 2025: 3PM-6PM SEPTEMBER 12TH 2025: 10AM-6PM

Oncologist explains the subtle signs of ‘silent killer’ ovarian cancer

Each year in Ireland, over 600 new cases of ovarian cancer are diagnosed and around 400 women die from this type of cancer annually.

There’s still a lot of misconceptions about ovarian cancer, such as women mistakenly believing cervical screening will prevent or detect it – it doesn’t. This is why it’s so important for women to be aware of the symptoms of ovarian cancer, and to not ignore them.

Remember the most common symptoms: BEAT, which stands for:

  • Bloating that doesn’t go away
  • Eating and feeling fuller earlier
  • Abdominal or pelvic pain
  • Toilet – changes to your toilet habits that are new (passing urine or bowel issues)

Check out: http://www.ovacare.ie + http://www.thisisgo.ie

https://www.rsvplive.ie/life/health/oncologist-explains-subtle-signs-silent-35541253?utm_source=linkCopy&utm_medium=social&utm_campaign=sharebar

Remember when food tasted like food?

“My beautiful burger tasted disgustingly metallic. It was inedible. It was so awful, I scraped the rest of it right into the trash. But that was only the first of many formerly favourite foods that have ended up in the trash lately”

This phenomenon is what’s known as chemo mouth or metal mouth, according to pharmacist Dr. Jessica Caporuscio. She explains that unpleasant  side effects – including these taste alterations – are unfortunately common during cancer treatments.

This bizarre side effect occurs because cancer treatments can activate certain receptors in the mouth or tongue that cause this metallic reaction.

While it can be distressing, the metallic taste and other taste changes usually resolve after treatment is complete.

Remember when food tasted like food?

Lynch Syndrome UK (mob App)

A dedicated Lynch Syndrome app for carriers of LS co-developed by LS UK.

Carriers of this condition can often struggle to access timely information advice.

This digital aid can be helpful to participate directly to prevent complications and personalise their health and well-being plans.