- Every patient should be given easily understandable information about all aspects of their diagnosis
- Every patient should be told about all their options for treatment and care
- A patient should take responsibility for their lives and their diagnosis and work with the doctor
- Patients should not have to fight to get correct treatment
Category: Information
SURVIVOR GUILT
Survivor guilt is common in Cancer Land.
Sometimes, you wonder why you’re still here when so many others, often with similar initial diagnoses to yours, are not. Adding guilt into the crapshoot is unhelpful and unnecessary. Nonetheless, add it in we do.
Flushing Your PICC Line at Home
Red flags for colorectal cancer in young adults
https://www.facingourrisk.org/XRAY/red-flags-for-colorectal-cancer-in-young-adults
Researchers were able to identify the following four signs that occurred more often in the group of patients with colorectal cancer compared to the group without colorectal cancer:
- rectal bleeding (which may be seen in stool)
- pain in the abdomen (belly)
- diarrhea
- anemia (not having enough red blood cells to carry oxygen to tissues), which is found by a blood test
While these symptoms might be due to other underlying conditions, it is important not to ignore these symptoms if they continue. Among these four signs, rectal bleeding was most commonly associated with developing colorectal cancer.
The English National Lynch Syndrome transformation project: an NHS Genomic Medicine Service Alliance (GMSA) programme
Conclusion: This ongoing transformational project is strongly supported by stakeholders in England. Significant quality improvement has been implemented, facilitating systematic delivery of universal testing for LS nationally and reduction in variation in care.
“Only by ‘mainstreaming’ of genetic testing by the same cancer multidisciplinary teams that diagnose and treat cancer locally can we ever hope to effectively find diagnoses of Lynch syndrome and open up the door to better cancer prevention survival” Kevin Monaghan(Gastroenterologist from @StMarksGenomics)
We Know Exercise Prevents Cancer.A New Study Tells Us Why
The study was small (just 21 people), but it builds on a vast body of evidence linking regular exercise to a decreased risk of cancer, particularly colorectal cancer. But the MD Anderson researchers went a step further, investigating how exercise might lower cancer risk.
I Have Lynch Syndrome —The Evolution From Patient To Advocate
Understand your diagnosis, educate yourself, connect with communities, advocate for yourself, raise awareness, know your rights and collaborate.
https://www.curetoday.com/view/i-have-lynch-syndrome-the-evolution-from-patient-to-advocate
Lynch Syndrome Ireland 