The Irish Network for Gynaecological Oncology comprises over 30 of Ireland’s foremost gynaecological cancer campaigners, researchers and patient advocates.
The aim of the group is to raise awareness of gynaecological cancers across the Island of Ireland. The group are part of an international effort for 2 major awareness events annually; World Ovarian Cancer Day on May 8th and World Gynaecological Oncology Day on September 20th.
Patients, Bowels, Basics, and Breakthroughs
On 11th & 12th September, RSCI is holding a bowel cancer event dedicated to patients, families, and the wider community affected by this cancer.
PVCR Chair Prof Amanda McCann is leading a session on Friday 12th September at 1:30pm on “The Importance of PPI in Research” with PhD students from ColoMARK and patient advocates from Bowel Cancer Ireland.
There will also be open conversations with doctors, researchers, and experts in fertility, sexual health, and psycho-oncology across the two days.
You can click here or scan the QR code below to register. Any questions or concerns can be directed to EpiGastroDRG@outlook.com
You can also check out their free bowel cancer informational booklet here or through the QR code below to the right.
PATIENTS, BOWELS, BASICS, AND BREAKTHROUGHS
SEPTEMBER 11TH 2025: 3PM-6PM SEPTEMBER 12TH 2025: 10AM-6PM
The GENE-ONC Education programme will support healthcare providers and cancer patients by integrating the study of a person’s genes (Genomics) into routine cancer care through both undergraduate and continuing education programmes. Genomic information and data are increasingly used to inform diagnosis and the choice of treatment strategies supporting much more tailored approaches to the management of cancer.
Central point for Lynch syndrome related issues in Ireland. An inherited predisposition to certain types of cancer e.g. colon and endometrial.
Bluesky: @lsireland.bsky.social
Instagram: Lynch syndrome Ireland
A personalised online resource for women impacted by cervical cancer. If you have a partner in your life, this platform can also support them. If you are a health care provider working in the area this can also support you and your
practice.
If you are newly diagnosed, receiving treatment, in surveillance
or living well with and beyond cancer this has information that is
tailored to meet your needs.
Also information on Ovarian, Uterine, Vulval and Vaginal cancers.
In addition a genetic pathway for those impacted by BRCA and Lynch Syndrome.
The international evidence shows that PPI is feasible, but evidence on the economic costs of PPI in research is sparse . It shows that drawing on the lived experience of PPI contributors can have positive benefits for health and social care research. It can lead to better outputs , and while it can enhance the quality and relevance of studies the evidence base on its impact remains weak.
There is evidence that PPI in health research can become tokenistic and concern that inviting patients and the public to ‘tinker at the edges’ undermines the broader aim of PPI to democratise research . International evidence shows that researchers are willing to change their practice, but lack of knowledge, skills and experience can hinder their involvement in PPI and they may be apprehensive about using PPI.
Embedding formal and experiential PPI training in a structured PhD programme is a novel approach. The evaluation has identified a number of lessons that can inform future doctoral programmes seeking to embed formal and experiential PPI training.
https://link.springer.com/article/10.1186/s40900-023-00516-4
From Tweets to Threads: Exploring the Transforming Role of Social Media in the Lynch Syndrome Community.
This provides the blueprint for the necessary development of hereditary cancer services in Ireland.
Lynch Syndrome Ireland 