As social media has become less regulated in recent years, and the influence of conspiracy theorists has grown, cancer misinformation has grown along with it. Here is how you can find trustworthy sources….
Author: Lynch Syndrome Ireland
Lynch Syndrome: Diagnosis & Treatment
https://www.mayoclinic.org/diseases-conditions/lynch-syndrome/diagnosis-treatment/drc-20374719
Your GP may want you to consider genetic testing for Lynch syndrome if your family history has one or more of the following:
- Multiple relatives with any Lynch-associated cancers, including colon cancer and endometrial cancer. Other cancers caused by Lynch syndrome include those that happen in the stomach, ovaries, pancreas, kidneys, bladder, ureters, brain, gallbladder, bile ducts, small intestine and skin.
- One or more family members who had cancer before age 50.
- One or more family members who have had more than one type of cancer.
- More than one generation of family with the same type of cancer.
Lynch Syndrome Management Guidelines – Gene Specific 2024 – UKCGG
Gynaecology and Lynch Syndrome
From LS UK Annual Conference 2024
Neil is a Clinical Lecturer and Gynaecology Oncology Surgical Subspecialty Fellow at the University of Edinburgh and NHS Lothian. His passion is to improve the care of those with Lynch syndrome through prevention and personalised treatment.
Adventures of a Sick Doctor
My brain began to make a bolt for the door…..
https://adventuresofasickdoctor.blogspot.com/2024/07/here-we-go-again.html
“Prevention is better than cure – vaccination for Lynch syndrome”
LS UK Conference 2024 – Dr David Church
Four vaccine schemes could prevent 1,400 deaths – report
https://www.rte.ie/news/2024/0703/1457891-adult-vaccination-programmes/
A shingles vaccine is available on the market, but it is not given routinely in Ireland.
Universal Germline Genetic Testing for Hereditary Cancer Syndromes in Patients With Solid Tumour Cancer(2022)
Historically, professional society guidelines have recommended limited genetic testing for hereditary cancer syndromes (HCS) to patients with cancer thought to be at highest risk for carrying pathogenic/likely pathogenic germline variants (PGVs) in a few selected genes.
Reasons for this approach were largely based on the high costs of testing, perceptions that HCS were rare in the general population, and a paucity of clinical utility.
Discussion of the current evidence that challenges these assumptions and supports the implementation of universal HCS testing among patients with solid tumours.
Lynch Syndrome Conference 2024
Check out the presentations on YouTube.
Up to date information on Lynch Syndrome
When I was told…
I suppose you want to know how I coped though. Ready?
https://peakd.com/hive-121589/@clodaghdowning/when-i-was-told
