If you are having routine gynaecological tests or treatment for womb cancer & would like to take part in a research study?
Author: Lynch Syndrome Ireland
Cancer Society ‘astonished’ at move to delay law banning insurer penalties
The right to be forgotten is the concept that cancer survivors who have gone a period of time without needing treatment should have their previous diagnosis disregarded when accessing insurance, life policies and financial products.
Insurance Ireland claims plans for mandatory action will undermine ‘fairness’ in the market, while the Department of Finance stalled the bill which would have stopped survivors being penalised.
“We published research in February 2022 which found that of the people who reported experiencing difficulties with financial providers, 49 per cent of the survey respondents who were affected by cancer were refused by one or more providers,”
Online personalised resource for you and yours who have been impacted by a gynaecological cancer.
Gynaecological cancers refer to any cancer of the female reproductive system which includes the uterus (womb), the ovaries, the cervix (the neck of the womb), the vulva (the outer part of the female genitals) or the vagina.
Ovarian cancer and was launched in February 2022 and the genetic conditions, BRCA and Lynch Syndrome, were added in May 2022. Uterine cancer went live in September 2022. Vulva cancer and vaginal cancer will be live before the end of 2022.
Just log on to https://thisisgo.ie and select “My Profile”
Many Early Onset Colon Cancers are Caused by Genetic Mutations Through Families
“The prevalence of hereditary cancer syndromes among early-onset colorectal cancer patients – including Lynch syndrome – was quite high, which presents a tremendous opportunity for us to save lives through early detection based on genomic risk factors,”
Based on this new data, the OSUCCC – James research team recommends genetic counseling and a broad, multi-gene panel test of cancer susceptibility genes for all early-onset colorectal cancer patients, regardless of family history or the results of tumor screening for Lynch syndrome. This differs from current professional guidelines, which recommend all colorectal cancer patients be screened for Lynch syndrome, with referral for genetic counseling and Lynch syndrome-specific genetic testing if the tumor-screening test is abnormal.
“We expected to find a high rate of Lynch syndrome among these early-onset colon cancer patients. What was surprising were some of the other gene mutations found in the young colorectal cancer patients, including mutations in genes traditionally linked to breast cancer risk, even in patients whose family history was not suggestive of those mutations,”
HRCI 2023 Position Paper – Embedding research in healthcare
“While there are many aspects of health research in need of attention and support, we believe it is particularly urgent to support the embedding of research within the health service.“
To this end, we lay out three recommendations:
Recommendation 1 Progress the implementation of a national electronic health record
Recommendation 2 Build on momentum to support genetics and genomics research
Recommendation 3 Establish research support functions within the health service
https://drive.google.com/file/d/1I14EY8MdChGaui6w5iXHU5oxrPuS_C7i/view
The NordICC Trial: The Devil Is in the Details
The NordICC trial was a randomized, pragmatic study that enrolled 84,585 adults aged 55 to 64 years old from Poland, Norway, and Sweden.
[T]he NordICC trial … fills an important knowledge gap and provides new insight into the real-world population-wide benefit of colonoscopy for colorectal cancer screening.
Preventing Colorectal Cancer
It is important to highlight an advantage of colorectal cancer screening that distinguishes it from all other cancer screening modalities. Colorectal cancer screening with endoscopy is unique in that it aims to, in part, prevent disease by identifying and removing premalignant lesions.
https://ascopost.com/news/november-2022/the-nordicc-trial-the-devil-is-in-the-details/
Medical gaslighting: ‘No man would be asked if they suffer from panic attacks while having a heart attack’
Women are more likely to feel their symptoms are not being taken seriously by doctors. Why?
“Medical gaslighting” is a controversial term that has emerged to describe a phenomenon some people – women in particular – may recognise. It refers to a patient’s feeling that their symptoms are not taken seriously, or are being misdiagnosed by healthcare professionals.
Now researchers are interested in understanding why this is, and whether gender stereotyping might play a role. Are doctors more likely to attribute pain or exhaustion in women to non-physical causes such as stress?
Person-based co-design of a decision aid template for people with a genetic predisposition to cancer
https://www.frontiersin.org/articles/10.3389/fdgth.2022.1039701/full
Conclusion: Adopting a co-design process helped ensure that the decision aid components were relevant and accessible to the target population. The template could have widespread application through being adapted for different genetic predispositions. The exact content should be co-designed with people from diverse backgrounds with lived experience of the specific predisposition to ensure it is as useful, engaging and relevant as possible
Lifestyle, genetic risk and incidence of cancer: a prospective cohort study of 13 cancer types
Conclusions:
The recommended lifestyle has beneficial associations with most cancers. In terms of absolute risk, the protective association is greater for higher genetic risk groups for some cancers. These findings have important implications for persons most genetically predisposed to those cancers and for targeted strategies for cancer prevention.
She With Lynch Syndrome
“The future is bright for those of us with Lynch syndrome and, most likely, for most of us with a hereditary cancer syndrome.“
She and all of the new medical advances for those with Lynch syndrome give me hope for if and when I ever develop cancer.
Lynch Syndrome Ireland 