Benefits and Drawbacks of Genetic Testing:
• Can identify those at risk of developing further cancer • Control/manage risks
• Can sometimes direct surgical/treatment options
• Explanation for why cancer had occurred
•Psychological/emotional impact
Can allow predictive testing of other relatives
• Identify those at risk- appropriate screening/risk reducing surgery • Increased anxiety/worry and guilt
Bowel cancer is the second most common non-cutaneous cancer diagnosed in Australia among both genders. Colonoscopy withdrawal time of at least 6 min has been accepted as the standard to achieve the target polyp detection rate (PDR) and adenoma detection rate (ADR).
Colonoscopies with withdrawal times of less than 6 min did not achieve the target detection rates. It is clear that achieving the advocated withdrawal time for screening colonoscopy improves detection rates.
Current guidelines recommend that patients with Lynch syndrome should have colonoscopy surveillance every 1–2 years starting at the age of 20–25. However, insufficient data are available to evaluate the quality and safety of colonoscopy surveillance for patients with Lynch syndrome nationwide in Japan.
The proportion of patients developing cancer was significantly higher with a >24 months than a ≤24 months interval.
High-volume experienced endoscopists and appropriate surveillance intervals may minimize the risk of developing colorectal cancers in patients with Lynch syndrome.
Food and Cancer- Myths debunked!
There is a lot of information available in relation to nutrition and cancer these days, and while often well-intentioned, it is not always based on scientific evidence.
Do you want to know if you should really be avoiding certain food groups? Increasing your intake of certain food groups?
This booklet aims to answer frequently asked questions….
Click to read the full booklet:
https://breakthroughcancerresearch.ie/the-truth-behind-food-and-cancer/
| Hosted by Dana Faber Lynch Syndrome Center |
| You can now watch presentations from this year’s LYNKED IN conference on our YouTube channel.Hosted by Dana Faber -Lynch Syndrome Center, the 7th annual LYNKED IN conference for individuals and families of those with Lynch syndrome was held on Sept. 24, 2022. |
If you are a doctor or other healthcare professional who may be interested, videos from the conference for healthcare professionals are now online here.
You have just been diagnosed with Colorectal Cancer (also known as bowel cancer, colon cancer or rectal cancer). This Passport is a guide to your treatment and follow-up care (surveillance).
It aims to help you understand and keep a record of your treatment pathway. Please remember to bring it to each hospital/virtual appointment.
Just as everyone is different, everyone’s treatment will be different.
A new Bill was recently brought before the Seanad will aim to ensure cancer survivors are not denied access to financial products like mortgage protection and insurance due to their medical history.
The Bill, which will seek to revise current legislation, outlines that a person seeking access to financial services will no longer have to declare a cancer diagnosis five years after finishing active treatment. The move is supported by the Irish Cancer Society.
What stories and what science do we find and share online when we are striving to connect with other “patients” or “carers” like us?
In this podcast, Stefania takes the case of two family cancer syndromes (BRCA and Lynch) to explore the way social media can shape everyday coping with the diagnosis of a rare or little known health condition.
https://offtheshelf.org.uk/event/digital-media-use-for-health-and-illness-dr-stefania-vicari/
RECOMMENDATIONS
Genomics be used in health care in a targeted way for the purpose of diagnosing and treating disease. It should not be used for aesthetic purposes.
Strong protections, and appropriate, adequate supports are put in place to assist individuals, especially individuals from vulnerable groups, in making informed decisions around genomic testing options during their journey towards a diagnosis.
Individuals are given the option either during or following the genomic testing consent process to share their genomic data for the purpose of supporting health research. The research should contribute towards better health outcomes for individuals or for society, and this contribution should be clearly detailed and explained during the consent process.
Members of the public who consent to share their genomic data to health research should not receive any financial reward or preferential treatment from the health system or from third parties, for example, medical cards or discounted premiums.
See full report here:
The strange juxtaposition of utter pain, destruction and sadness in my private life and the brave, strong and positive patient in public was stifling. I didn’t want to hear how I was an inspiration simply for trying not to die. I didn’t want to hear how brave I was. I didn’t want to hear how upset my own cancer made Sally from fifth grade (who hadn’t spoken to me since).
https://www.curetoday.com/view/patients-with-cancer-don-t-owe-grief-tourists-anything
Lynch Syndrome Ireland 