These workshops are aimed at nurses looking for an introduction to Lynch syndrome and the project, and will cover the basics.
Category: Endrometrial
A Guide to Lynch Syndrome
Lynch Syndrome
Lynch Syndrome is an inherited condition that increases your risk of developing some cancers, including bowel, womb and ovarian cancer. We have developed a guide to run through everything you need to know about Lynch.
A Guide to Lynch Syndrome
This guide has been made with input from experts, people with Lynch Syndrome and our Ask Eve nurses to provide you with all the information you need when offered testing for, or navigating a diagnosis of, Lynch Syndrome.
We also have an Easy Read guide to Lynch Syndrome, which you can download here
Lynch Syndrome
Online personalised resource for you and yours who have been impacted by a gynaecological cancer.
Gynaecological cancers refer to any cancer of the female reproductive system which includes the uterus (womb), the ovaries, the cervix (the neck of the womb), the vulva (the outer part of the female genitals) or the vagina.
Ovarian cancer and was launched in February 2022 and the genetic conditions, BRCA and Lynch Syndrome, were added in May 2022. Uterine cancer went live in September 2022. Vulva cancer and vaginal cancer will be live before the end of 2022.
Just log on to https://thisisgo.ie and select “My Profile”
Women with womb cancer are to be offered a genetic test for Lynch syndrome
Oct 2020 -UK
Women with Lynch syndrome are likely to develop womb cancer before showing signs of bowel cancer. A diagnosis of the genetic condition means they can be offered regular checks, and aspirin therapy, to reduce their risk of bowel cancer.
Researchers found that, of 305 UK women offered testing for Lynch syndrome around the time of their treatment for womb cancer, 302 accepted.
Women’s family members can also be offered testing. The researchers found that protecting family members was the main reason why women wanted to be tested. They were most receptive at follow-up appointments after surgery for their womb cancer.
September is Gynaecological Cancer Awareness Month
Check out this valuable source of information: https://thisisgo.ie
ThisisGO.ie
Another brilliant resource now available for women living with/beyond and with a predisposition to cancer.
Phase 3 live now
-400 women are diagnosed with Uterine cancer every year. 70-80% diagnosed are living with obesity.
Log on to https://thisisgo.ie/?fbclid=IwAR13F4M_K4vkAjBjD__7C7zDvxQdpgWuSW-IQnmA3JX9LePG9QDh9qay_X8 for accurate info.
European guidelines from the EHTG and ESCP for Lynch syndrome: an updated third edition of the Mallorca guidelines based on gene and gender(2021)
The recommendations from the EHTG and ESCP for identification of patients with Lynch syndrome, colorectal surveillance, surgical management of colorectal cancer, lifestyle and chemoprevention in Lynch syndrome that reached a consensus (at least 80 per cent) are presented.
https://academic.oup.com/bjs/article/108/5/484/6287132?login=false
Lynch Syndrome for the Gynaecologist
Cumulative Lifetime risks of cancer in Lynch Syndrome
Endometrial: Up to 57%
Ovarian: Up to 17%
thisisgo.ie Cancer Genetics Section
Women’s health resources has just gotten a whole lot better! With the launch of http://thisisgo.ie cancer genetics today.
“We see women and their families impacted by gynaecological cancer as partners in their care”
The Manchester International Consensus Group
Provides comprehensive clinical guidance that can be referenced by both patients and clinicians so that women with Lynch syndrome can expect and receive appropriate standards of care.
“Our key recommendations are as follows: The Manchester International Consensus Group recommendations for the management of gynecologicalcancers in Lynch syndrome:
(1) all stakeholders should be informed of the impact of Lynch syndrome on gynecological cancer risk;
(2) systems should be established to screen for Lynch syndrome in women with endometrial cancer;
(3) women at risk of Lynch syndrome should be offered risk-reducing hysterectomy with bilateral salpingo-oophorectomy, at a time appropriate to them; and
(4) further research is required to establish the value ofgynecological cancer surveillance in Lynch syndrome and toexplore other key areas where there is currently deficientevidence to define appropriate standards of care.
Screening for Lynch syndrome is only recommended if effective management exists to benefit those who screen positive.The strength of our guidance comes from the broad andexpert medical specialty representation that forms ourConsensus Group.”
Lynch Syndrome Ireland 