Lynch  Syndrome  Ireland

Irish Cancer Society-Living Well with and Beyond Cancer 2021

Living Well with and Beyond Cancer 2021

Irish Cancer Society’s Annual national conference took place online on Wednesday, 2 June and Thursday, 3 June.

A range of speakers shared their experiences, stories and expert knowledge on living well after a cancer diagnosis through a mix of virtual presentations, interactive workshops and Q&A sessions. The last year has been difficult for people affected by cancer and the uncertainty and isolation continues for many. We would encourage cancer patients, survivors and those that care for them to watch the recordings from this unique online event.

The conference recordings look at topics like self-care, healthy eating, exercise as well as advances in cancer treatment. 

You can view the recordings at www.cancer.ie/livingwell

Unmet need: Cancer Genetics Services

Environmental scan sponsored by Irish Cancer Society by Prof. Josephine Hegarty UCC

Beginners Guide to Lynch Syndrome

https://www.royalmarsden.nhs.uk/our-consultants-units-and-wards/clinical-units/cancer-genetics-unit

“Bowel cancer doesn’t discriminate on gender or age…We need to be having a more open public conversation about it and need to highlight hereditary cancer syndromes so we can get better at identifying the families affected and give them the opportunity to reduce their cancer burden. It would save so many lives.”

https://www.irishtimes.com/life-and-style/health-family/hereditary-cancer-syndromes-are-by-no-means-a-death-sentence-1.4517765?fbclid=IwAR2Ef00DgVaiK-7q-mMIVG2mvUqQOXRkv0hCmADdqYT200_t3TQ0V1-jehc#.YGbVYwAGKRg.facebook

Lynch Syndrome Awareness Day. (22nd March 2021)

NCCN: Genetic/Familial High Risk Assessment: Colorectal. (1.2020)

https://www.nccn.org/professionals/physician_gls/default.aspx#genetics_colon

World Cancer Day 4th February 2021

Choirs for Cancer

Please tune in to #ChoirsforCancer2021 hosted on YouTube on 4th Feb (#WorldCancerDay) at 7pm (GMT)

– see http://bit.ly/3qJOwBF

Let’s talk and think Lynch & prevent the associated cancers.

Some really important information about Lynch Syndrome that every gynaecologist should know.

Ongoing research being conducted at the School of Psychology, NUI Galway about experiences as a Lynch Syndrome carrier in Ireland.

The Final Blog

“A mad Christmas spending spree

And presents around the tree
The gift I require
To escape from this mire
Is to be told that I’m cancer free!
Patrick thank you.Gone but not forgotten.

Bowel Cancer Man

Since my husband Patrick died in January this year it’s felt very special to continue his blog. Over the last few months, I’ve shared my experience of grief and the impact of Patrick’s illness and death on our family.  There’s no tidy ending with these life changing events but it feels a natural place to stop so this will be the last update to the blog. As I bring the blog to a close I thought I’d share my thoughts on what it’s meant for me, and leave you with Patrick’s Christmas bowel cancer limericks which he wrote in December 2018.

Patrick started this blog after he was diagnosed with stage 4 bowel cancer in June 2017. Those early months were a blur as we all faced up to the reality of a terminal diagnosis and adjusted to a life full of uncertainty, endless appointments, chemotherapy, and Patrick’s new stoma…

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